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Development of a CAregiver Reported outcome measure for Dementia (CARED)-Study Participant

Virtual / Remote Ongoing

Summary

This research study is designed to support researchers to develop a questionnaire to measure dementia outcomes from a caregiver's perspectives.

Location

Virtual / Remote

This opportunity can be done from anywhere.

When

Opportunity Type
Ongoing - Start Anytime
Schedule
Immediately

About This Opportunity

Caregivers play a vital role in understanding the progression of dementia and its real-world impact. We are developing the CAregiver REported outcome measure for Dementia (CARED) to ensure that caregivers' perspectives are included in evaluating dementia impact and treatment effectiveness.

What’s Involved?

  • Complete a short demographic questionnaire.
  • Fill out the CARED questionnaire and related surveys about daily activities and function.
  • Complete the CARED questionnaire again after 2 weeks and 4 weeks.

Time Commitment:

  • Initial participation: ~30 minutes
  • Follow-ups (at 2 & 4 weeks): 5-10 minutes each

Your insights will help improve dementia care and decision-making for caregivers and families.

If you are interested in learning more about this research and wish to participate, please email us:

rehabqol@mcmaster.ca

Volunteer Requirements

Whether you meet these requirements or not, we encourage you to share your interest in us. You may still be a fit for a different opportunity with our organization.

  • Minimum 18 years old
  • caregivers and are supporting a friend, partner, or family member with a diagnosis of dementia living in the community

Causes

Healthcare, Medical, & Wellness Seniors Virtual-Online Volunteering Community & Social Services

Tags

dementia caregiving healthy living lived experiences knowledge sharing expertise sharing OntarioVolunteers VolunteerOpportunity FamilySupport

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