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    My Impact

    Volunteer Fundraising Coordinator

    Are you passionate about making a difference in the lives of those affected by Stevens-Johnson Syndrome (SJS) and related conditions? SJS Canada is seeking a dedicated Volunteer Fundraising Coordinator to help lead and grow our fundraising efforts.

    Role Details

    Position Overview

     In this role, you will coordinate creative fundraising campaigns, plan engaging events such as charity walks and virtual initiatives, and build meaningful relationships with donors, sponsors, and community partners. You’ll lead a small team of volunteers, collaborate with our communications team to share impactful stories, and track fundraising progress to support our programs and advocacy work.

    This position requires approximately 3–5 hours per week, with flexibility during major campaigns. While experience in fundraising or nonprofit work is an asset, it is not required, enthusiasm, organization, and strong communication skills are key.

    By joining SJS Canada, you’ll gain valuable hands-on experience in fundraising and event coordination, expand your professional network, and most importantly, make a meaningful impact for individuals and families affected by SJS/TEN.

    SJS Canada is committed to equity, diversity, and inclusion. We welcome applicants from all backgrounds and are dedicated to fostering a respectful and inclusive volunteer environment.



    Key Responsibilities

    • Lead a small fundraising team of volunteers to plan and execute SJS Canada fundraising initiatives.
    • Attend coordinator's meetings and schedule team meetings as needed.
    • Reports to the Administrative Team

     Fundraising Campaigns: 

    • Develop and coordinate innovative fundraising campaigns, including online, peer-to-peer, and community initiatives. 
    • Design and distribute materials to promote fundraising efforts. • Monitor campaign progress and provide updates to the team.

    Event Planning:  

    • Plan, organize, and execute fundraising events such as charity walks, virtual webinars, auctions, and community gatherings. 
    • Coordinate event logistics, including venue arrangements, volunteer recruitment, and budget management.  Promote events through social media, email, and partnerships with local organizations.

    Donor Relations 

    • Identify and engage with potential donors, sponsors, and grant opportunities.  
    • Maintain relationships with existing donors, providing regular updates and acknowledgment of their contributions.
    •  Assist in writing grant applications and sponsorship proposals.

    Social Media and Marketing Support  

    • Collaborate with the communications team to create compelling content for social media, newsletters, and the SJS Canada website to highlight fundraising efforts. 
    • Share impact stories and testimonials to inspire donations.

    Financial Tracking and Reporting 

    • Maintain accurate records of donations, sponsorships, and expenses. 
    • Provide regular reports on fundraising progress and outcomes to the leadership team.

    Community Engagement 

    •  Act as an ambassador for SJS Canada, building relationships with community members and local businesses to increase awareness and support. 
    • Represent the organization at community events and outreach programs.

    Qualifications: 

     Passion: 

    • Strong commitment to the mission of SJS Canada and raising awareness for rare diseases. 

    Experience: 

    • Previous experience in fundraising, event planning, or nonprofit work is an asset but not required. 
    • CFRE certification is an asset but not required.

    Skills: 

    • Excellent communication and interpersonal skills.  
    • Strong organizational abilities and attention to detail. 
    • Creativity and problem-solving skills to develop effective campaigns.
    • Basic proficiency with social media platforms and fundraising tools.

     Attributes:

    • A proactive attitude, teamwork spirit, and the ability to work independently.
    Time Commitment 

    • Approximately 3-5hours per week, with flexibility based on availability. 
    • Additional time may be required during major fundraising events or campaigns.
    Benefits of Volunteering  

    • Gain hands-on experience in fundraising, event coordination, and donor relations. 
    • Build professional skills and expand your network within the nonprofit sector. 
    • Make a meaningful impact by supporting individuals and families affected by SJS. 
    • Receive acknowledgment for your contributions, including a letter of recommendation if requested.

    What is our position on Equity, Diversity, & Inclusion? 

     At SJS Canada, we are committed to ensuring that every person has an equal opportunity to apply for roles within the organization. Illness doesn’t discriminate and we believe that all people should have access to fair and equal treatment whether that be medical, mental, or otherwise. We strive to continually learn and improve our equity, diversity, and inclusion practices to better serve the SJS/TEN affected community.

    How to Apply

     Please send an expression of interest to info@sjscanada.org including a resume and cover letter detailing previous applicable experience and reason(s) for applying. SJS Canada thanks all applicants for applying, however, only those selected for an interview will be contacted.


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    Requirements to Volunteer

    Be sure you and your group meet the requirements to volunteer below. The organization may request proof or verification.

    Note: By selecting you meet a requirement, you are giving your electronic consent that you and your friend or group do meet the requirements and can provide proof if or when requested.

    Volunteer with

    You've selected the Volunteering with Friends option. List each person below, one at a time and then click Add Friend. Your friends don't need to be registered with Volunteer Success but they will receive an email to opt out. You are first on this list and cannot remove yourself.

    You are signing up to the waitlist for this role. If a spot becomes available for you due to cancellations, we will send you a confirmation message.

    Minimum age requirement is Yound Adult (Age 18-56) for all participants of this event.

    Volunteer with Group

    Select a group you are already a part of below. These are found in your profile groups page. You can only select a group that has you as a member or above. You can create a new group from your profile-groups.

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    Last thing before confirming your interest.

    You are about to tell Stevens-Johnson Syndrome Canada that you're interested in their volunteer opportunity Volunteer Fundraising Coordinator If you'd like to add some additional information about yourself or ask questions, you can do so in the message box below.

    Once you click the confirm button, Stevens-Johnson Syndrome Canada will be notified you're interested in volunteering for them and they will have access to your profile, contact information, and resume. You can wait for them to follow up with you or contact them through their Stevens-Johnson Syndrome Canada profile page.

    Interest Confirmed

    Way to go! You are on your way to doing good.

    Stevens-Johnson Syndrome Canada has been notified that you are interested in the opportunity Volunteer Fundraising Coordinator.

    Stevens-Johnson Syndrome Canada has been notified that you are interested in this opportunity.

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